Remote All-Day Conference

Bringing the world of Marfan and Loeys-Dietz syndromes into focus, our (remote) Patient Information Day for 2026 opens with an expert presentation on the eye, moving on to the aorta, school adaptations, genetics, fatigue and pain, and finally the feet. We’ll also glimpse the future through presentations on research, with time to mix and mingle virtually along the way.

All this and more on Saturday, 14 November, a little later this year to accommodate our London symposium! Book your free place today. (We will send a Zoom link two days in advance).

9.30am   Registration

9.45am   Welcome

10am    The Eye & Intraocular Lens Implants 
Vitreoretinal Fellow Mr Mohamed Katta, Royal Free NHS Foundation Trust

10.30am:  The Genetics of Marfan & Loeys-Dietz Syndromes
Clinical Geneticist Dr Matina Prapa, Consultant in Clinical Genetics, St George's Hospital & Royal Brompton Hospital, London, UK 

11am to 11.20am TEA BREAK 

11.20 - 11.50am Adaptations at School for Pupils with MFS & LDS
Occupational Therapist Natasha Woodgate

11.50 - 12.20 Discussing PEARS (Personalised External Aortic Root Support) 
Tal Golesworthy

12.20 - 13.20 LUNCH

13.20 - 14.00 Science in the Sonalee Laboratory
with Dr José Aragon-Martin & Jessica Alvarez

14.00:  Feet and Connective Tissue Disorders 
Medical Student Amelie Teferle & Podiatrist Elizabeth Allport

14.30 - 14.45pm TEA BREAK

14.45pm - 15.00 The Eye in Marfan Syndrome 
Medical Summer Student Joshua  Fakulujo - 

15.00 - 15.30 Fatigue and Pain in Marfan & Loeys-Dietz Syndromes
with Dr Anne Child & Kannan Maheswaran