Poised for exciting times, the Marfan Trust is a small charity making a big difference, an indelible difference to the lives of those affected by Marfan syndrome. Be a part of the change, and become an essential trustee!
Founded in 1988 by its current Medical Director Dr Anne Child, the Trust has evolved through a series of distinguished accomplishments, from forming the consortium that identified the Marfan gene, and creating an internationally acclaimed laboratory to establishing a helpline offering direct access to specialist knowledge. We are a niche charity of great consequence with global clout. And we continue apace.
Since its merger with the Marfan Association we are now uniquely placed as the only charity in the United Kingdom concentrating on the syndrome. We are also embarking on a new chapter, becoming a membership organisation and expanding our community of supporters.
With new exciting status comes new serious responsibilities. Our Board of Trustees has looked long and hard itself, in doing so identifying several gaps in its pool of knowledge. Gaps that must be filled in order to effectively support, steer and oversee this small and significant Trust.
A Treasurer: essential to any charity is the person overseeing its finances. Are you a chartered accountant with the acumen and ambition to become our trusty treasurer?
A Fundraising Guru: can you open doors to prospective supporters and donors. With COVID-19 there are fewer than ever pools of money available. We receive no government support but rely purely on the goodwill of our community. We need your powers of persuasion to develop relationships with commerce and grant-makers to help keep our laboratory and helpline alive.
By filling these gaps, you will be guiding the Trust through our next new exciting chapter, making a tangible difference to an important community. You will be writing for our twice-yearly newsletter and attending our quarterly meetings. Your voice will be heard. Become our essential Trustee!