The Marfan Trust embarks on raising awareness of Marfan syndrome.

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Sky diving fundraising for the marfan trust

Our objectives

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Research

To fund medical research projects that aim to aid the diagnosis and treatment of Marfan syndrome patients.

Education

To provide educational literature on Marfan syndrome and all its aspects to the medical profession and the general public, thus raising awareness of the condition.

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Support

To provide peer-to-peer support and medical guidance to those affected and their families.

News

The Huddersfield Daily Examiner: Eye test revealed toddler's life-threatening condition

Meet Tim and Claire Szoradi, they are holding an event this year to raise awareness for their son…

Events

What is Marfan syndrome

Marfan syndrome is an inherited disorder of the body’s connective tissue that affects men and women of any race or ethnic group.

Marfan syndrome was identified in 1896 by a French physician, Antoine Marfan. The syndrome is an inherited disorder of the body’s connective tissue which predisposes to medical problems affecting the heart, eyes and skeleton, requiring treatment to prevent serious complications

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