The Marfan Trust embarks on raising awareness of Marfan syndrome.

Learn more Get involved
Sky diving fundraising for the marfan trust

Our objectives

123

Research

To fund medical research projects that aim to aid the diagnosis and treatment of Marfan syndrome patients.

Education

To provide educational literature on Marfan syndrome and all its aspects to the medical profession and the general public, thus raising awareness of the condition.

>

Support

To provide peer-to-peer support and medical guidance to those affected and their families.

News

Future Scientists in the Making

Here in St Georges we have 2 new excellent students helping us in the Sonalee laboratory for 6 months.…

Events

What is Marfan syndrome

Marfan syndrome is an inherited disorder of the body’s connective tissue that affects men and women of any race or ethnic group.

Marfan syndrome was identified in 1896 by a French physician, Antoine Marfan. The syndrome is an inherited disorder of the body’s connective tissue which predisposes to medical problems affecting the heart, eyes and skeleton, requiring treatment to prevent serious complications

Learn more about what we do