The Marfan Trust provides peer-to-peer support for those with Marfan syndrome.

Learn more Get involved

Our objectives

123

Research

To fund medical research projects that aim to aid the diagnosis and treatment of Marfan syndrome patients.

Education

To provide educational literature on Marfan syndrome and all its aspects to the medical profession and the general public, thus raising awareness of the condition.

>

Support

To provide peer-to-peer support and medical guidance to those affected and their families.

News

David Finkletaub Award 2016

On the 19th September Sabrina Gruhl was award 2016 for her project in the lab on Marfan Syndrome.…

Events

What is Marfan syndrome

Marfan syndrome is an inherited disorder of the body’s connective tissue that affects men and women of any race or ethnic group.

Marfan syndrome was identified in 1896 by a French physician, Antoine Marfan. The syndrome is an inherited disorder of the body’s connective tissue which predisposes to medical problems affecting the heart, eyes and skeleton, requiring treatment to prevent serious complications

Learn more about what we do