The Marfan Trust charity funds medical research into Marfan syndrome.

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Marfan trust laboratory

Our objectives

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Research

To fund medical research projects that aim to aid the diagnosis and treatment of Marfan syndrome patients.

Education

To provide educational literature on Marfan syndrome and all its aspects to the medical profession and the general public, thus raising awareness of the condition.

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Support

To provide peer-to-peer support and medical guidance to those affected and their families.

News

Marfan Trust Project Costs Wish List

Can you help the Marfan Trust meet the following annual costs so it can continue it's vital research:    Laboratory…

Events

Book Sale 14 Aug 2018 - St Georges Hospital

Come to our book sale in aid of the Marfan Trust on Tuesday 14th August between 10am to 3pm.…

What is Marfan syndrome

Marfan syndrome is an inherited disorder of the body’s connective tissue that affects men and women of any race or ethnic group.

Marfan syndrome was identified in 1896 by a French physician, Antoine Marfan. The syndrome is an inherited disorder of the body’s connective tissue which predisposes to medical problems affecting the heart, eyes and skeleton, requiring treatment to prevent serious complications

Learn more about what we do