Keep up to date with the work of the Marfan Trust charity

May 29, 2018

Sonalee Laboratory Update Spring 2018

By Dr José Antonio Aragon-Martin    The work being carried out at the Sonalee Laboratory (the Lab) is really starting to take shape. This year we were lucky enough to be able to host 1 PhD student, 4 industrial placement…
May 29, 2018

Research Update Spring 2018

Good News! We are extremely grateful to the Trustees of the charity “Make My Day Better” for their most generous travel grant of £2,984 which took three of our research…
Jan 30, 2018

New! Marfan Syndrome and Related Disorders Empowerment Series

Our friends at the The Marfan Foundation in the USA have just announced a new webinar programme which some of you might be interested in. It's the Marfan Syndrome and Related Disorders Empowerment Series. Each webinar will focus…
Sep 6, 2017

Our Next Generation of Scientists

This year we welcome four new BSC students to the Sonalee Laboratory: Michael Garcia, Brenda Wohlner, Andriana Masoha and Emilia Stanczyk from both Kingston and Brunel Universities. They will be working in the Sonalee Laboratory for one year alongside Sonalee Laboratory Director,…
Sep 6, 2017

Hotline News

A Cautionary Tale  Three months ago, a 45 year old Englishman emailed us for advice. He was diagnosed with Marfan Syndrome since childhood when his dislocated lenses were discovered. Where could he go to have his heart checked? The Marfan Trust Hotline advised GP referral to his regional…
Sep 6, 2017

Making Decisions When Starting a Family

Latest research on prenatal diagnosis in Marfan Syndrome pregnancies can help patients and their partners make decisions when starting a family acording to Carline Ryder-Dobson. Caroline is a fourth year student at St George’s University of London, and has spent the summer working…