News

Keep up to date with the work of the Marfan Trust charity

Oct 9, 2018

Management of Pain in Marfan Syndrome

Research by Natasha Anieh-Benno, medical student, St George’s University of London   The Pain Questionnaire project mounted in the spring Marfan Trust newsletter 2018 produced an excellent response, for which we are grateful. Analysis…
Oct 9, 2018

AIMS Trial - Results Postive

Aortic Irbesartan Marfan Study (AIMS)   A big THANK YOU to all of you who participated in the national medication trial of irbesartan (a close relative of losartan). 192 Marfan syndrome patients volunteered, in 22 clinics…
Aug 30, 2018

Silent Auction 2018

Can you help the Marfan Trust raise much needed funds for continued research into Marfan syndrome by donating prizes to us to use in our upcoming silent auction? Or perhaps you know an organisation/business owner/business manager or other person who could donate a prize to us? In…
Jun 4, 2018

Useful Resources

Videos from "Living with Marfan Syndrome” by the Royal Society of Medicine View nine useful videos
Jun 4, 2018

Sonalee Laboratory Wish List 2018

The Sonalee Laboratory is sponsored by the Marfan Trust. We urgently need to replace Laboratory equipment and buy new instruments to broaden our research. Crucially, we also need to fund our all important research students to continue our vital work. Our donation Wish List is detailed below:    If…
May 29, 2018

Sonalee Laboratory Update Spring 2018

By Dr José Antonio Aragon-Martin    The work being carried out at the Sonalee Laboratory (the Lab) is really starting to take shape. This year we were lucky enough to be able to host 1 PhD student, 4 industrial placement…