News

Keep up to date with the work of the Marfan Trust charity

May 30, 2017

Q&A: Joint and Muscle Problems in Marfan Syndrome

Dr Anne Child and Professor Rodney Grahame - Explain All. Joint and muscle problems can affect a Marfan syndrome patient at any age. They can be managed both preventively and by choosing sports and lifestyle sensibly. Any exercise involving stretching may reduce pain. Pain relief can be provided… Read more
May 30, 2017

Interviews with Marfan Heroes

Mike Horgan from Salisbury, UK ran the London Marathon in aid of his partner Glen Price who suffers from Marfan Syndrome. We interviewed Mike to find out his tips on how to run a marathon and how he coped with the build up. Overall Mike raised £5,000 plus for the Marfan Trust! Well Done Mike! 1.   …
May 30, 2017

Mandi's Story

Since October 2016 Mandi has been completing the 500 in 1 challenge. This includes the Bright 10 Mile Run (Brighton), the Great South Run, the Box Hill Tough (10k high climb hill run, Surrey), the Heartbreaker Marathon (26.2 mile new Forrest trail run), Cranliegh 15 mile, the Hundred Acre Half Marathon…
May 30, 2017

Hotline Appeal

This lifeline phone number is not NHS funded but relies on your donation so please give generously Click here for ways to make your donation. “My GP doesn't know anything about Marfan Syndrome” “I am a doctor in Afghanistan.…
May 25, 2017

Family Fun Day 2017 - Morgan Motor Factory

On 12th April 2017 the Marfan Trust held its annual family fun day at the famous Morgan Motor Factory in Worcestershire.  The day kicked off with a welcome from Morgan CEO Steve Morris and Dr Michael Carr, chairman of the Marfan Trust. Highlights of the day included: A presentation…
Apr 10, 2017

Helping Hearts Charity Ball

On the 30th September, Katherine Goodman is organising the Helping Hearts Charity Ball in the H.G.Wells Conference & Events Centre in Woking. This will be a perfect way to say goodbye to summer and hello to autumn. The tickets are £50 per head and will include a 3 course scrumptious dinner,…