News & Events

Keep up to date with the work of the Marfan Trust charity, find out all our News, Events and research here.

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Jul 25, 2017

Living with Marfan Syndrome Conference

Want to know more about living with and managing Marfan Syndrome? Would you like to meet other patients and carers and find out about support systems? or do you simply want questions answered? If this is the case, why not come to the half day LIVING WITH MARFAN SYNDROME CONFERENCE on 29th September…
Jul 18, 2017

Brandenburg Choral Festival for the Marfan Trust

Enjoy a relaxing early evening concert in beautiful surroundings and raise money for the Marfan Trust at the same time! The wonderful Brandenburg Choir will be performing on Sunday 15th October at the
May 30, 2017

Update and Diagnoses

Many people like to keep their medical condition to themselves.  However, 80 people with Marfan syndrome and their relatives, attended our Family Fun Day in April, which included one hour of presentations on the latest diagnostic approaches and ways to manage Marfan syndrome for children and adults.…
May 30, 2017

Q&A: Joint and Muscle Problems in Marfan Syndrome

Dr Anne Child and Professor Rodney Grahame - Explain All. Joint and muscle problems can affect a Marfan syndrome patient at any age. They can be managed both preventively and by choosing sports and lifestyle sensibly. Any exercise involving stretching may reduce pain. Pain relief can be provided… Read more
May 30, 2017

Chairman's Letter

Letter from the Chairman: Dr Michael Carr BSc (Hons), PhD, Cert.Ed, CBiol, MIBiol. Conference: Marfan Syndrome and Beyond: An Update on Aortopathy, Diagnosis and Management. Friday 21st October 2016. St George's, University of London. The Marfan Trust hosted this packed academic…
May 30, 2017

Interviews with Marfan Heroes

Mike Horgan from Salisbury, UK ran the London Marathon in aid of his partner Glen Price who suffers from Marfan Syndrome. We interviewed Mike to find out his tips on how to run a marathon and how he coped with the build up. Overall Mike raised £5,000 plus for the Marfan Trust! Well Done Mike! 1.   …