Keep up to date with the work of the Marfan Trust charity

Aug 30, 2018

Silent Auction 2018

Can you help the Marfan Trust raise much needed funds for continued research into Marfan syndrome by donating prizes to us to use in our upcoming silent auction? Or perhaps you know an organisation/business owner/business manager or other person who could donate a prize to us? In…
Jun 4, 2018

Useful Resources

Videos from "Living with Marfan Syndrome” by the Royal Society of Medicine View nine useful videos
Jun 4, 2018

Sonalee Laboratory Wish List 2018

The Sonalee Laboratory is sponsored by the Marfan Trust. We urgently need to replace Laboratory equipment and buy new instruments to broaden our research. Crucially, we also need to fund our all important research students to continue our vital work. Our donation Wish List is detailed below:    If…
May 29, 2018

Sonalee Laboratory Update Spring 2018

By Dr José Antonio Aragon-Martin    The work being carried out at the Sonalee Laboratory (the Lab) is really starting to take shape. This year we were lucky enough to be able to host 1 PhD student, 4 industrial placement…
May 29, 2018

Research Update Spring 2018

Good News! We are extremely grateful to the Trustees of the charity “Make My Day Better” for their most generous travel grant of £2,984 which took three of our research…
Jan 30, 2018

New! Marfan Syndrome and Related Disorders Empowerment Series

Our friends at the The Marfan Foundation in the USA have just announced a new webinar programme which some of you might be interested in. It's the Marfan Syndrome and Related Disorders Empowerment Series. Each webinar will focus…