News & Events

Keep up to date with the work of the Marfan Trust charity, find out all our News, Events and research here.

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Feb 9, 2017

Marfan Trust Family Fun Day 2017

A day out for the whole family! We are delighted to announce that we are hosting another Family Fun Day, this year in the iconic Morgan Motor factory and its extensive grounds. This is a free event and there'll be something for everyone, not just for all you petrol heads!. The day will include tours…
Dec 2, 2016

We've been adopted!

Thanks to our great supporter Richard Bream, the Marfan Trust has been adopted by TVR Car Club Speed Championship as the charity of the year 2017. This is excellent news for the Trust. This will mean that most, if not all competitor's cars will carry the Marfan Trust logo throughout the season.  Also,…
Nov 14, 2016

Network Event 10th November

"On Thursday, November 10th, the Marfan Trust held a networking event in the Graveney and Meadow pub in Tooting, London. This was aimed at local businesses in the area. The evening consisted of a presentation by marketing expert Jack Tomlinson. This was followed by a talk from Carole Finkletaub,…
Oct 24, 2016

American Society of Human Genetics Conference in Vancouver

On the week of the17th October 2016 our scientists headed to Vancouver, Canada to attend the American Society of Human Genetics conference. At the conference they went to many workshops and discussions. This proved to be very useful and informative, and enabled our scientists to establish a network…
Sep 23, 2016

Daniel Finkletaub Award 2016

On the 19th September, Sabrina Gruhl won the Daniel Finkletaub award 2016 for her project in the Sonalee Laboratory on Marfan Syndrome. Sabrina is a student at St George's University and has worked alongside our scientists Dr Jose Aragon-Martin and Alex Wan for the past year. Sabrina worked extremely…
Aug 24, 2016

Future Scientists in the Making

Here at St George's we have 2 new excellent students helping us in the Sonalee Laboratory for a year. They are Alice Samoto and Lydia Ait Belkacem from Kingston University. Our Director of the Sonalee Laboratory Dr Jose Antonio Aragon-Martin is teaching them new skills in the laboratory to help our…