Keep up to date with the work of the Marfan Trust charity

Nov 27, 2018

Mince Pies for Marfan

We’re launching what we’re hoping will become a fun and very yummy annual fundraising initiative that everyone can take part in: Mince Pies for Marfan. We want people all over the country to host their own Tea Parties for friends, family or colleagues…
Nov 21, 2018

St. George's Committed to Marfan Syndrome Treatment

St. George’s is committed to the treatment of Marfan syndrome and looking after patients. This care includes clinic consultation, genetic testing of the patients and their families, performing relevant investigations and determining the best treatment option including surgery. The team continues to…
Oct 9, 2018

Marfan Trust Project Costs Wish List

Can you help the Marfan Trust meet the following annual costs so it can continue it's vital research:    Laboratory Costs Salaries: £52,000  Consumables: £38,000 Medical Student Summer Scholarships x 3 @ £1,100 each (naming…
Oct 9, 2018

Marfan Patient Information Day – Southampton 7th July 2018

By Ed Stilliard, Journalist People from across the country came to a Marfan meeting in Southampton to talk about being affected by the condition.  Whether they have been diagnosed with the condition,…
Oct 9, 2018

Research Update Autumn 2018

AIMS Trial  The Aims trial has now been completed and was presented at the European Society of Cardiology in late August 2018, and published in September. A summary is published in News section of the websiter. Many thanks to all concerned. It has been a great success.…
Oct 9, 2018

Incidence of Pneumothorax in Marfan Syndrome

Research by Saba Mahmoud, medical student, St George’s University of London    What is the correct incidence of pneumothorax (free air in the chest cavity that causes the lungs to collapse) in Marfan syndrome?  Lung complications…