News

Keep up to date with the work of the Marfan Trust charity

Feb 5, 2019

Research Director Appeal

Help the Marfan Trust launch its appeal for £300,000 with a bang this #MarfanAwarenessMonth. We need additional donations to be sure of maintaining the Sonalee Lab and keeping our Research Director, Dr. José Aragon Martin,…
Dec 19, 2018

..And the Bear is.....Polar

Thanks to all of you who came to the St. George's Hospital's Christmas Fair and particularly to those who visited us on the Marfan Trust stand. With your help, we raised over £600 which will all go to support research in to Marfan syndrome. Particularly popular was the "Name…
Nov 27, 2018

Mince Pies for Marfan

We’re launching what we’re hoping will become a fun and very yummy annual fundraising initiative that everyone can take part in: Mince Pies for Marfan. We want people all over the country to host their own Tea Parties for friends, family or colleagues…
Nov 21, 2018

St. George's Committed to Marfan Syndrome Treatment

St. George’s is committed to the treatment of Marfan syndrome and looking after patients. This care includes clinic consultation, genetic testing of the patients and their families, performing relevant investigations and determining the best treatment option including surgery. The team continues to…
Oct 9, 2018

Marfan Trust Project Costs Wish List

Can you help the Marfan Trust meet the following annual costs so it can continue it's vital research:    Laboratory Costs Salaries: £52,000  Consumables: £38,000 Medical Student Summer Scholarships x 3 @ £1,100 each (naming…
Oct 9, 2018

Marfan Patient Information Day – Southampton 7th July 2018

By Ed Stilliard, Journalist People from across the country came to a Marfan meeting in Southampton to talk about being affected by the condition.  Whether they have been diagnosed with the condition,…