Fundraisers

 

We love our fundraisers, and we would like to share their stories with you.

Ewan's Story

On the 12th December 2012, Ewan Robertson sadly passed away at the age of 27.  He was an exceptionally talented artist and released his own music on the Big Dada label.  Ewan was also involved in the visual art component of the label and established his own…

Carol Gill; Bridge Night

Our brilliant Trustee, Carol Gill, organized a local bridge night in Chiswick, in the London Borough of Hounslow. It took place in 11 restaurants in the area with a variety of players totaling 200. It was amazingly successful and they raised a staggering £2700 for the Marfan Trust! Carol’s goal was…

Lucy Gash; 1 year 10 challenges

Thank you so much Lucy Gash and your wonderful friends for completing a whopping 10 challenges for us this year in aid of your brother Liam's memory. The challenges included: 1   Newcastle Valentines 10k (14th February 2016) 2   Climb Skiddaw ( 9th April 2016) 3   Sunderland 10k/Half…

Peter and Sheila Pryke Coffee Morning

In November 2016, Sheila and Peter Pryke organised a coffee morning for our charity.  They had on sale a variety of delicious homemade cakes, homemade jams and surplus garden produce. For the event they managed to raise a whopping £345! As well as the generous amount raised for us, they also have…

Graeme Briscoe Morrisons Family Fun Day

In October 2016, Mike Parkinson decided to throw a family fun day at his workplace, which is one of the UK's largest supermarket chains, Morrisons. This was in aid of his employee Graeme Briscoe.This was a Halloween event aiming to raise awareness of Neonatal Marfan syndrome and to raise funds for…

Gareth Staples Big Bold Challenge 2016

This year Gareth Staples took part in the Big Bold Challnge 2016. Within the challenge he managed to complete the following: A 5K run 500 stair climb 50 metre Abseil. All in all he raised a fantastic £174 which was matched then by vodafone totaling £348! A big well done Gareth for completing these amazing challenges for us and raising all that money for the trust. I hope your taking a well deserved break Gareth and puttting your feet up as you desserve it.