Blog

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Harriet G - An Introduction to Me

Hello my name is Harriet, I am 13 ½ years old and I live in West Yorkshire, England. I have always known about my Marfans but never told anyone, especially not my friends. After having back surgery for the curve in my spine (a common symptom of Marfans) in April, I decided it was time…

Chloe Gamblen - Marfan Syndrome Awareness

My name is Chloe, I’m 18 years old and I suffer with Marfan Syndrome. Marfan Syndrome is a genetic disorder that affects the connective tissue and has many physical symptoms that make it easy to detect the syndrome. It affects approximately 1 in 5000 people, and I happen to be the 1 within…

Lucy Atkinson - My Journey Through Blogging

Happy December Everyone! I'm not taking part in Blogmas this year as I'm not always able to sit at my computer typing for long periods due to my chronic health conditions. It wouldn't be possible to write a blog a day throughout the month so instead I'm just going to share some of my highlights. I've…