Our Staff & Trustees

The Marfan Trust is a small charity which has two staff members, the Fundraising Administrator and the Director of the Sonalee Laboratory. We also have six Trustees and a Chairman who all have a wide range of skills and expertise. They donate their time to ensure that the Trust meets its key objectives. We are also very lucky to have the wonderful Dr Anne Child who is the Medical Director and Medical Adviser to the Marfan Trust. She provides an invaluable level of knowledge and compassion.

We would like to introduce you to the team:

Dr Caroline Carr MA(Oxon) MBBS FRCA

Before her recent retirement, Caroline Carr was Clinical Director and Consultant Anaesthetist at Moorfields Eye Hospital, London. She has been professionally involved with Marfan patients at various times in her career, most notably at Harefield Heart Hospital where Professor Magdi Yacoub performed…

Barry Landa

Barry was appointed a Trustee in April 2012. He has more than 25 years experience within the legal sector working with both barristers and solicitors, and is currently the Practice Manager of a large provincial firm of Solicitors. Barry is directly affected by Marfan syndrome as are a large number…

Victoria Stilliard

Victoria Stilliard’s interest in the Marfan Trust stems from her younger son having Marfan syndrome. She is a District Nurse and is currently employed by a Hampshire PCT as a Team Leader in Intermediate Care.

Lucy Knox BDS

Lucy Knox qualified as a Dentist in 1999. Whilst at University she studied the dental aspects of Marfan syndrome and has written a number of dental brochures for the Marfan Trust. Her siblings have Marfan syndrome and she is also affected by the condition.

Medical Director: Dr Anne Child MD FRCP

Dr Child graduated in Medicine from the University of Toronto. Specialising in paediatrics, she studied in Vancouver, New York and San Francisco. A growing interest in prevention of disease through genetic counselling and early diagnosis led her to specialise in clinical genetics, firstly in Montreal…

Director of Sonalee Laboratory: Dr Jose Antonio Aragon-Martin, BSc (Hons), PhD.

Dr Aragon-Martin got a PhD in Molecular Genetics in 2009 from St George’s University of London and a BSc (Hons) in Biochemistry in 2001 from Greenwich University. Dr Aragon-Martin grew up in Palma de Mallorca, Baleares, Spain. He moved to London in 1993. During his Industrial Placement year…