Our Staff & Trustees

The Marfan Trust is a small charity which has two staff members, the Fundraising Administrator and the Director of the Sonalee Laboratory. We also have six Trustees and a Chairman who all have a wide range of skills and expertise. They donate their time to ensure that the Trust meets its key objectives. We are also very lucky to have the wonderful Dr Anne Child who is the Medical Director and Medical Adviser to the Marfan Trust. She provides an invaluable level of knowledge and compassion.

We would like to introduce you to the team:

Chairman: Dr Michael Carr BSc (Hons), PhD, Cert.Ed, CBiol, MIBiol.

Dr Michael Carr has been Chairman of the Marfan Trust since October 2015. Michael is affected by Marfan syndrome and has been a Trustee since 2000. Now retired, he taught and researched in the university sector for over 25 years, holding a number of senior positions for academic quality, before becoming…

Medical Director: Dr Anne Child MD FRCP

Dr Child graduated in Medicine from the University of Toronto. Specialising in paediatrics, she studied in Vancouver, New York and San Francisco. A growing interest in prevention of disease through genetic counselling and early diagnosis led her to specialise in clinical genetics, firstly in Montreal…

Director of Sonalee Laboratory: Dr Jose Antonio Aragon-Martin, BSc (Hons), PhD.

Dr Aragon-Martin got a PhD in Molecular Genetics in 2009 from St George’s University of London and a BSc (Hons) in Biochemistry in 2001 from Greenwich University. Dr Aragon-Martin grew up in Palma de Mallorca, Baleares, Spain. He moved to London in 1993. During his Industrial Placement year…

PhD Student: Yui Bong Alexander Wan

​Alex's research involves the use of bioinformatics analysis, in-vitro methods and animal models to identify, validate and understand the genetic causes of thoracic aortic aneurysms and dissection.

Fundraising Administrator: Louise Taylor

Louise holds a degree in Business and Marketing from the University of South Wales. She has a keen interest in social media, research, online marketing, event planning and fundraising. She also has several years of experience in the charity sector. She is keen to develop the charity to move towards…

Treasurer: Eleanor Bate

Eleanor became a Trustee in 2011. She is a Chartered Accountant, having qualified in 2009 after completing her traineeship at a medium-sized London firm. She now works at Royal Bank of Scotland where she has undertaken various Finance and Treasury roles. Eleanor, her father and her sister are all…