The Marfan Trust is the only Marfan charity in the UK that funds its own laboratory undertaking medical and analytical research so that more is known about Marfan syndrome and its management. The results of our internationally recognised research enable doctors and surgeons to provide better treatment for patients in the short and long term. Over 18,000 people are affected by Marfan syndrome in the UK, with many more anticipated to be living with the condition undiagnosed. Our important work hopes to improve the treatment of patients and increase awareness of this condition.
The Marfan Trust’s three main objectives are:
1. To fund medical research projects that aim to aid the diagnosis and treatment of Marfan syndrome patients.
2. To provide educational literature on Marfan syndrome and all its aspects to the medical profession and the general public, thus raising awareness of the condition.
3. To provide peer-to-peer support and medical guidance to those affected and their families.
Our website includes information on the medical aspects of Marfan syndrome; advice and guidance on living with Marfan syndrome; updates on our latest research projects and publications and ways to support the Trust’s important work.